Weekly Blogs! Every Monday!

Weekly Blogs! Every Monday!

Red Stick Sickle Cell Group is an independent social advocacy group focused on improving the lives of those affected by sickle cell disease. Our mission is to provide sickle cell disease and trait education, raise awareness, and offer support services. Our goals include expanding programs, distributing resources, and achieving financial stability.

  • Increasing public knowledge through awareness campaigns and community events reduces stigma and fosters a supportive environment. 

  • Contribute your expertise in areas such as healthcare, education, marketing, or administration to help us enhance our programs and outreach efforts.

  • Red Stick Sickle Cell Group is dedicated to creating a supportive and informed community for sickle cell warriors. We address their immediate needs, provide advocacy, and ensure they have the necessary resources to thrive.

Special Edition Newsletter: Pfizer’s Unexpected Global Withdrawal of Oxbryta (Voxelotor) Pfizer has recently announced the sudden worldwide discontinuation of Oxbryta (Voxelotor), a key medication used to treat sickle cell disease. This unexpected decision has raised concerns within the sickle cell community, as Oxbryta plays a significant role in managing the disease by improving hemoglobin levels and reducing complications. In this special edition, we’ll explore the potential reasons behind this withdrawal, its impact on patients, and what this means for the future of sickle cell treatment options. #sicklecellawareness #redsticksicklecell Link πŸ”— in bio.
πŸŽ₯Urgent Update for Sickle Cell Warriors: Pfizer has just pulled **Oxbryta (Voxelotor)** worldwide, and it’s left a lot of us wondering what happens next. This medication has been crucial for so many in our community. How will this sudden withdrawal affect you or your loved ones? Drop your thoughts or experiences in the comments, and let’s keep this conversation going. πŸ’¬ We’re stronger together, and we’ll get through this as a community! Stay tuned for more updates and support. πŸ™πŸ½πŸ’ͺ🏽 #SickleCellWarriors #OxbrytaUpdate #StayInformed #WarriorCommunity #RedStickSickleCell --- https://www.warriorsspeakout.org/warrior-ryze-blog
πŸŽ—οΈ Sickle Cell Awareness Month is just around the corner! πŸŽ—οΈ Did you know that sickle cell disease affects approximately more than 100,000 people in the U.S., primarily those of African descent? It's a genetic blood disorder that can cause severe pain, organ damage, and other serious complications. As we gear up for September, we'll be sharing important facts to help raise awareness and bust some myths about sickle cell disease. πŸ’ͺπŸ½πŸ’‰ πŸ”₯ Stay tuned for our *Fact or Myth* giveaway next month—test your knowledge and enter the giveaway for a prize while spreading awareness! πŸ™ŒπŸ½ #SickleCellAwarenessMonth #SickleCellFacts #WarriorStrong #RedStickSickleCell #WarriorRyze #FactOrMyth #StayTuned
Week 3 is an informed insight on how and why 504 plans are essential for students living with sickle cell. www.warriorsspeakout.org #SickleCellAwareness #RedStickWarrior #StayInformed #KeepRising
πŸ›‘οΈ Warriors Prep: Weekly 504 Plans πŸ›‘οΈ As we gear up for another school year, it’s essential to ensure that our sickle cell warriors have everything they need to succeed. This week, our article focuses on creating and implementing effective 504 Plans for students with sickle cell disease. In “Week 3 Warriors Prep Weekly", We cover 504 Plans. • Understanding 504 Plans: What they are and why they’re crucial for students with chronic conditions. • Steps to Create a Strong 504 Plan: A guide to working with your child’s school to ensure accommodations are in place. • Advocacy Tips: Empowering parents and caregivers to be the best advocates for their child’s education and health. Let’s make sure our warriors are set up for success in the classroom and beyond! 🏫✨ πŸ‘‰ www.warriorsspeak.org for week 3 newsletter #SickleCellWarriors #504Plan #BackToSchool #RedStickSickleCell #WarriorsPrep
πŸ’‘ Tip for Parents of Sickle Cell Warriors: Stay informed about your child's rights under the ADA and FMLA. These laws provide crucial protections and accommodations to ensure your child receives the support they need at school and you have the flexibility to care for them. πŸ’ͺπŸ“š #SickleCellAwareness #WarriorPrepWeekly #ParentingTips #ADA #FMLA #RedStickSickleCell
Welcome to Week 2 of Warrior Prep Weekly! This week, we’re focusing on the importance of the Family and Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA) for parents and caregivers of sickle cell warriors. Discover how these laws protect your rights and provide the support you need to balance work, family, and medical responsibilities. We'll also share insights into 504 Plans and IEPs to ensure your child receives the accommodations they deserve. Empower yourself with knowledge and resources(included links for guidance), Warriors! πŸ’ͺπŸ“š #WarriorPrepWeekly #SickleCellAwareness #FMLA #ADA #504Plans #RedStickSickleCell
πŸ“° August Newsletter Out Now!πŸ“° In Week One, we're focusing on back-to-school preparations for students living with sickle cell, their parents, and caregivers. Discover tips, resources, and support to ensure a smooth and healthy start to the school year. Read more in our latest issue! πŸ“šβœ¨ #SickleCellAwareness #BackToSchool #SupportAndEmpower --- www.warriorsspeakout.org
πŸ‘οΈ July is Healthy Vision Month! πŸ‘οΈ For those living with sickle cell disease, taking care of your vision is crucial. Sickle cell can lead to serious eye complications, but regular eye exams and proper care can make all the difference. **Why Vision Care Matters:** πŸ”Ή Early detection of problems like retinopathy πŸ”Ή Prevention of further complications πŸ”Ή Improved quality of life **Tips for Healthy Vision:** 1️⃣ Schedule regular eye exams 2️⃣ Wear sunglasses to protect your eyes from UV rays 3️⃣ Maintain a diet rich in vitamins A, C, and E 4️⃣ Stay hydrated 5️⃣ Avoid smoking Let’s prioritize our eye health and support those with sickle cell disease in maintaining clear vision! πŸ’™ #HealthyVisionMonth #SickleCellAwareness #EyeCare #VisionHealth #RedStickSickleCell πŸ’―
πŸ‘οΈ July is Healthy Vision Month! πŸ‘οΈ For those living with sickle cell disease, taking care of your vision is crucial. Sickle cell can lead to serious eye complications, but regular eye exams and proper care can make all the difference. **Why Vision Care Matters:** πŸ”Ή Early detection of problems like retinopathy πŸ”Ή Prevention of further complications πŸ”Ή Improved quality of life **Tips for Healthy Vision:** 1️⃣ Schedule regular eye exams 2️⃣ Wear sunglasses to protect your eyes from UV rays 3️⃣ Maintain a diet rich in vitamins A, C, and E 4️⃣ Stay hydrated 5️⃣ Avoid smoking Let’s prioritize our eye health and support those with sickle cell disease in maintaining clear vision! πŸ’™ #HealthyVisionMonth #SickleCellAwareness #EyeCare #VisionHealth #RedStickSickleCell
Special Edition Newsletter: Pfizer’s Unexpected Global Withdrawal of Oxbryta (Voxelotor) Pfizer has recently announced the sudden worldwide discontinuation of Oxbryta (Voxelotor), a key medication used to treat sickle cell disease. This unexpe
πŸŽ₯Urgent Update for Sickle Cell Warriors: Pfizer has just pulled **Oxbryta (Voxelotor)** worldwide, and it’s left a lot of us wondering what happens next. This medication has been crucial for so many in our community. How will this sudden wi
πŸŽ—οΈ Sickle Cell Awareness Month is just around the corner! πŸŽ—οΈ Did you know that sickle cell disease affects approximately more than 100,000 people in the U.S., primarily those of African descent? It's a genetic blood disorder that can cause severe
Week 3 is an informed insight on how and why 504 plans are essential for students living with sickle cell. www.warriorsspeakout.org #SickleCellAwareness #RedStickWarrior #StayInformed #KeepRising
πŸ›‘οΈ Warriors Prep: Weekly 504 Plans πŸ›‘οΈ As we gear up for another school year, it’s essential to ensure that our sickle cell warriors have everything they need to succeed. This week, our article focuses on creating and implementing effective 5
πŸ’‘ Tip for Parents of Sickle Cell Warriors: Stay informed about your child's rights under the ADA and FMLA. These laws provide crucial protections and accommodations to ensure your child receives the support they need at school and you have the flex
Welcome to Week 2 of Warrior Prep Weekly! This week, we’re focusing on the importance of the Family and Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA) for parents and caregivers of sickle cell warriors. Discover how thes
πŸ“° August Newsletter Out Now!πŸ“° In Week One, we're focusing on back-to-school preparations for students living with sickle cell, their parents, and caregivers. Discover tips, resources, and support to ensure a smooth and healthy start to the school
πŸ‘οΈ July is Healthy Vision Month! πŸ‘οΈ For those living with sickle cell disease, taking care of your vision is crucial. Sickle cell can lead to serious eye complications, but regular eye exams and proper care can make all the difference. **Why Visi
πŸ‘οΈ July is Healthy Vision Month! πŸ‘οΈ For those living with sickle cell disease, taking care of your vision is crucial. Sickle cell can lead to serious eye complications, but regular eye exams and proper care can make all the difference. **Why Visi