Our Mission
Red Stick Sickle Cell Group, founded in memory of my sister Raven who lived with sickle cell disease, is dedicated to supporting individuals and families affected by this condition. We have established partnerships with Sick Cells, Sickle Cell Consortium, Rare Patient Voice, and Honeycomb Health to enhance our efforts in advocacy and awareness for and to help sickle cell warriors live full lives without limitations.
Founded in Baton Rouge, LA, we engage with diverse groups of all ages to spread awareness and foster a supportive community. Our goal is to empower sickle cell warriors to share their stories and raise local and overall global awareness. Join us in our mission to make a lasting impact on the sickle cell community.
-Whitney C.
What We Provide:
Comprehensive Resources and Support
We are looking to develop a comprehensive resource hub that includes educational materials, treatment options, and care guidelines for managing sickle cell disease. Offer resources for parents, caregivers, and warriors, including guides on FMLA and ADA, 504 plans, and IEPs. Our website will feature a library of articles, videos, and downloadable materials to you and the support the sickle cell community.
How We Support:
Foster Community Engagement and Support
Red Stick Sickle Cell Group creates a platform that encourages community interaction through forums, discussion boards, and support groups. Our website will promote upcoming events, meetings, and advocacy opportunities to engage the community actively. Personal stories and testimonials from sickle cell warriors and their families will be highlighted to build a sense of connection and solidarity.
Advocate for Awareness and Policy Change
We will try to provide to most updated information on current advocacy initiatives and policy changes affecting the sickle cell community. Also, we will offer tools and resources for warriors and caregivers to get involved in advocacy efforts, such as templates for contacting legislators and participating in awareness campaigns. Our website will also showcase the group's accomplishments and ongoing projects to inspire and mobilize further action within the community.
How We Advocate:
To My Fellow Sickle Cell Warriors,
Today, I want to remind you of how incredibly powerful and beautiful you are. Living with sickle cell disease may come with unique challenges, but it's important to never let these obstacles overshadow your worth and potential. Embrace self-love and create a safe space for yourself and others, where we can share our experiences, lift each other up, and inspire one another to live our best lives.
-Whitney C.
