Separating Fact from Fiction WK 1
September is Sickle Cell Awareness Month!
Welcome to the first week of Sickle Cell Awareness Month! As we kick off a month dedicated to education and advocacy, our focus this week is on understanding the fundamental differences between sickle cell disease (SCD) and sickle cell trait (SCT). While these terms are often used interchangeably, they represent two distinct conditions, each with its own implications. Let's dive in and separate fact from fiction.
Greetings Warriors and Friends,
Let’s start off with our first Myth and Fact….
MYTH:
Sickle cell disease and sickle cell trait are the same thing.
FACT:
Sickle cell disease and sickle cell trait are different in both genetic makeup and health impact.
Sickle Cell Trait (SCT)
- What It Is: Sickle cell trait occurs when a person inherits one sickle cell gene (from one parent) and one normal gene (from the other parent). Individuals with SCT generally do not exhibit symptoms of sickle cell disease, but they can pass the sickle cell gene to their children.
- Health Implications: While most people with SCT live normal, healthy lives, extreme conditions like severe dehydration or high altitudes can occasionally cause complications. However, these instances are rare.
Sickle Cell Disease (SCD)
- What It Is: Sickle cell disease occurs when a person inherits two sickle cell genes, one from each parent. This causes the red blood cells to become rigid and shaped like a sickle, leading to blockages in blood flow, pain crises, and potential organ damage.
- Health Implications: SCD requires regular medical care and management to prevent complications and improve quality of life. It’s a chronic condition that affects many aspects of a person's health.
Sickle Cell Disease
This is what an individual with sickle cell daily life looks like internally. Yes, it happens out the BLUE. Instant PAIN!
Why It Matters:
Understanding the difference between SCT and SCD is crucial for making informed decisions about family planning, healthcare, and managing the conditions. Genetic counseling can help individuals and families understand their risks and options.
Educational Resource:
To further illustrate the differences, hers is an infographic that you can share with others. It’s a handy tool to help explain these conditions to friends, family, and anyone interested in learning more.
Join the Conversation:
Do you or someone you know have SCT or SCD?
How has understanding these conditions impacted your life?
We invite you to share your story or thoughts on our Facebook, Red Stick Sickle Cell Group or Instagram @redsticksicklecell using the hashtag #RedStickAwareness. Let’s spread the word and correct these common misconceptions together!
Stay Engaged and Win
Remember, each day this month, we’re posting a Fact or Myth question on our social media platforms. Every correct answer earns you an entry into our raffle, with a winner announced on September 30th. Don’t miss out on your chance to win and help raise awareness!
Thank you for being a part of this important month of awareness. Together, we can make a difference by spreading knowledge and supporting one another.
Stay strong, stay informed, and keep rising!
Warm regards,
Whitney
Red Stick Sickle Cell Advocacy Group